Tuesday, April 10, 2012

Living With Cancer vs Dying From Cancer

It was last Friday (Good Friday) that Australian Current Affairs (ACA) aired Cancer Cure Claim, featuring Dr. Ian Gawler (http://www.gawlerblog.com/).
It was with excitement I awaited to see an amazing man such as Dr Ian Gawler on mainstream television. Advanced cancer survivor of 30+ years, with then seriously poor prognosis of maximum 6 months to live in mid 70s... And here he is now, in 2012, still going strong, healthy and well and helping others living with cancer and numerous general people who aspire to live a healthy, well balanced life. His foundation and him personally cover many aspects of mind - body medicine and encourage people to take control of their well - being in an integrative way.
He is the main inspiration on my own cancer journey and I feel absolutely nothing but pure respect towards him.

If you watched the segment on ACA, you would have soon realised that the story didn't unfold the way I expected. In fact, it was completely opposite, condemning the amazing work Ian has been advocating over the past 25+ years. I was left extremely sad and disappointed.

I stayed at The Gawler Foundation (http://www.gawler.org/) twice last year.
First time it was soon after my diagnosis of advanced breast cancer. I attended a 10 day residential program and after an amazing and very empowering experience of abundant learning about the path of the journey of living with cancer, I decided to return to attend a 5 day follow up 'cancer retreat' later in the year, together with my partner. Needless to say, it was the best thing I have ever done for myself in my whole entire life.

I can briefly list just a few things I have learned at The Gawler Foundation:
  • how to take control of my 'cancer journey' (to make decisions of my treatments - conventional such as chemotherapy, radiotherapy, surgery and complementary such as acupuncture, holistic GP, massage...  with clarity and determination)
  • how to accept my diagnosis and achieve peace of mind (tools and techniques)
  • how to eliminate my past emotional barriers (counselling and some helpful self-techniques and practices, useful resources - books, CDs, podcasts...)
  • how to look after myself physically (with proper nutrition, diet, exercise...)
  • the importance of balanced life (mind body soul)
  • and many many more
Overall, it was very intense, but totally life - changing experience.

So, watching the segment on ACA last Friday, condemning the amazing work they do at The Gawler Foundation, was nothing less but heartbreaking for me. And the comment by Tracy Grimshaw to finish with: "Desperate people do desperate things" was completely improper and out of place.
I am not anywhere near close to being a desperate person, nor is anyone I have crossed paths while at The Gawler Foundation.

Living life with cancer is very challenging. It is a very fine line between living with cancer and dying from it. I am a strong believer in the power of mind. Yes, of course there are million types of different cancers, and even though advanced and many seem the same, yet they are all different. Just as people are different, cancers behave differently. How come some people with the 'same' type of cancer fall into statistics and die exactly in due time, while others live many years and can have good quality of life regardless of diagnosis?!?
I don't know about you, but my common sense tells me to look for clues and answers in people that are long term survivors. Especially those rare few who are considered 'spontaneous remissions'. And when you do start reading and researching into those cases, you find there are many more than your average Oncologist (like Dr. Lowenthal who appeared on ACA) tells you.

Unfortunately our conventional medicine can only afford researches into prevention and treatment drugs, sponsored by huge pharmaceutical companies, which are not interested in long term survivors, but rather in people who have cancer and need those heavy drugs to somehow extend their life or ease them into death. It is a huge industry. I, as a cancer patient, undergoing numerous treatments, am worth tens of thousands of dollars a year, if not hundreds... Once I'm in a remission (a survivor!), treatments and medications stop and I am no longer of any value to them. That, sadly, is reality.
So no wonder there are no funds to support research in long term survivors... Quite cruel, isn't it?

I do apologise for the lengthy post and I am extremely grateful if you are still reading it. But I have to get this off my chest, as I find it quite frustrating and extremely unfair.

All I tried to explain is the difference between LIVING WITH CANCER and DYING FROM CANCER. I am living with it. And I am living well. In fact, my quality of life is way higher now then has ever been before.

It is both, good and bad, when I either see someone I haven't seen in ages or meet someone new and they say: 'so sorry about your cancer, wow, but you look so good, I would have never thought...'
It's good because it's true. Although I look different (from side effects of numerous different drugs I am on) I still look healthy and well. Probably healthier than most of the general population, as I am looking after myself with extremely healthy diet and lifestyle.
And it's bad, because general person expects me (diagnosed with advanced / secondary / a very serious stage 4 cancer) to look like I'm dying.

And that, I suppose is the main difference.
The perception of the world today still is that having cancer means one will die way before their time, while in fact, one actually can live an extremely fulfilling abundant life managing cancer just as any other chronic illness.
Or even better, just as the likes of Dr.Ian Gawler or another amazing Australian - Petrea King (the founder of Quest For Life), one can achieve the state of complete remission.

Hopefully, sometime in the very near future every single newly diagnosed cancer patient will aim for the above.
And I sincerely hope that our conventional Doctors, Oncologists and media, start encouraging the awakenings of survivors within us all and support us all to take path towards this amazing and already achievable goal, with all their respect, optimism and positivity or just keep nice and quite, and learn to practice some compassion if there's nothing hopeful to be said...

3 comments:

  1. Tina, as usual well done for addressing "difficult" subjects.
    I find this sort of "journalism" SO destructive . There is unfortunately a very good chance that admirers/advocates/patients could be badly affected by these comments, it's happened before with other integrative techniques and proves the power of the mind.
    People like Dr David Hamilton talk about the power of the mind and ability to heal the body in amazing circumstances - so imagine a person who has conquered an illness despite the odds from the medical fraternity to hear on national media that one of the techniques they apply to their healing has been "officially" (very thing on tv and news is true!!!!!)

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  2. Cont!
    Dismissed as being able to cure a condition - the power of the mind is so strong that it could then flip to the opposite of healing and actually cause a great deal of harm - in one case I've read of - death.
    These journos need to know what it's like to live with cancer themselves before opening their mouths.

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  3. Well done Tina how dare ACA represent Ian as a charlatan. Who are they to condemn? Have they done any research? Have they looked into the hundreds of survivors the foundation has helped? They should mind their own business if they want to report such rubbish and have Ian's ex- wife's friend on as an aggressor.....sad and not journalism.

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