Showing posts with label wellness. Show all posts
Showing posts with label wellness. Show all posts

Saturday, June 30, 2012

Back To The Good Place

Is it possible that once one experiences that place of peace and clarity, one becomes so addicted to it, that then, when that place gets lost in the day to day issues, in the average state of mind, one finds it harder to pull him / herself back up, knowing that the amazing place of peace and clarity exists, because it is so good, way better than one would ever expect.
Too deep and meaningful?
Let me try to explain...

I have recently been through a very rough patch. I was physically very unwell. Probably most unwell I have ever been in my life. It was hard. And I found it extremely hard to deal with. Physically and mentally.
All sorts of thoughts have been going through my head... Being on heavy medications didn't help. Starting to experience some familiar but 'new' symptoms in my chin didn't help either. My thoughts were going quite wild. Negative. Not my usual self, I got spiraled into almost a depressive mood... Many questions were raised in my head. I felt uncertain, for a long time. And since I haven't yet had a scan of my head, I still do feel a bit uncertain. I want answers. And I want solutions.
Anyhow, I do feel better, physically and mentally. But I think I have lost the measurement of wellness somewhere on the way...

In my head, the only way is up! And I was quite high up feeling-wise for a while there. I was absolutely certain I am doing the right thing and that I will feel better and better each day. At least physically. I was expecting to be off steroids and on reduced other medication by the time I finish chemotherapy. I expected all my lumps (visible subcutaneous tumors that are pretty much all over my body) will be much smaller and I will overall feel much better, more energetic...

Well, it turned out very different.
Not only my tumors are still there, some of them got bigger. Steroids and other medication are all the same dose as they were before chemo. And the worst part is, there's new symptom - tingling and numbing sensation in my chin, combined with a pressure headache which indicate that I have an active tumor somewhere in my head...
Not good. Not good at all.

Now, because I've experienced the place of peace & contentment for quite a few months and I can vividly remember how amazing it feels, does that make my current feeling of uncertainty worse? Worse in a way that my standard to feel good is now much higher than it was 2 years ago, before I knew that place of complete acceptance, peace of mind and clarity existed? Is that possible?
I hope so. Because that would mean it's not that bad now after all. And to get out of this unpleasant feeling, yes, it is easier, because I know how and I have the tools.

The bad news is that no matter what happens, what results I get next week, this is my life now and I truly need to (lovingly) accept all, whatever comes my way...
The good news is that I am on the up. On the up in a way of feeling better, day by day, physically and mentally. It's a slow recovery, but it is a recovery. An extremely slow climbing and a very long way up, since my barometer has changed, but I am on the way up.

What I really don't need is any news that there are new or extra tumors in my brain. I believe I am done with it. I believe those tumors were treated a year ago and my mind and my mental state has changed enough to not grow any new ones...
I would love some good news. It would make my existence much easier. And it would make my 'way up' much faster.

I am still tired....

Please, oh please, mighty universe, deliver some good news this time! Surely I more than deserve them!

Wednesday, June 27, 2012

My Only Wish

As I'm lying down, resting, healing (have been for the past couple weeks since my last radio therapy), I can not help but feeling sorry for myself...
I am unwell. Truly, physically unwell. I have not been this unwell ever before in my life.
I am weak, extremely fragile, finding it very hard to walk, sit, stand for longer than 5 minutes at the time... I hardly leave the house these days. Dropping off my daughter to school is an enormous task. Even just visiting the Doctor sometimes too hard ... I can't go down the beach, since I can't walk for more than couple hundred meters. I don't go out to cafes at the moment, since I can't sit properly for more than 5 minutes and it requires way too much of an effort to dress up in the first place...
My favorite place is home, in my recliner. Just lying down, snuggled in a blankie, cups of tea, a nice romantic comedy, my iPhone and 3 comfort meals a day. My only desired company is my beautiful daughter and my loving man...
My emotions are all over the place too.
I mostly feel sad. And frustrated for being so useless. Angry, when I wish to do something and I realise I can't. I also feel scared of losing the vision ...
The vision of being well again.

The numbness in my leg, particularly in my foot, is much easier to handle than the pain, but yet it's hard to deal with when trying to move around. Or even just putting clothes on. It requires much too much effort.
The tingling sensation in my chin is scary. Scary because it's been there before, about a year ago. And soon after that, there came cancer diagnosis in my chin, scull and tumors in my brain. The tingling went away after radio treatment, but came back recently ... Does that mean cancer in my chin is back?

We were meant to be in Thailand at the moment. A three weeks long warm sunny tropical family holiday. Creating lovely memories. Well, we are not there, because I'm too unwell. The trip has been postponed till mid September. Something to look forward to. But I want to be well! I want to be healthy. I want to be pain free, numbness free, feeling well, energetic, and full of life. Possibly on a very low dose of medication, no steroids. Will I?

Another challenge is my hair. It's been over 6 weeks since my chemotherapy. My body hair is slowly coming back, but my hair is staying so very thin... It's just horrible. I cut it short the other day to get rid of that horrid 'zombie' hair look. But didn't do it any justice. Now all my bright red subcutaneous tumors (which are placed all over my scull) are obvious and are visibly popping out... Not a good look. Scary, really.

I look unwell. I feel unwell.
And I had enough! I am exhausted. Exhausted of needing to make important decisions on my future treatments, exhausted of feeling old, fragile, unhealthy, weak, unstable, uncertain.... And sick of seeing someone else in a reflection when I look in the mirror.

My only wish is to feel well.

Saturday, June 9, 2012

Like A Yo-Yo

Coming off steroids isn't fun. I feel annoyed, shaky inside, weak on the outside. Still moon faced, horribly bloated and being very thin haired doesn't help.
The good part is, I am reducing the steroids. Hopefully I can go down to zero. That's the goal. At the moment I'm down to 3mg, from original 4mg.

The above was written about 4 weeks ago now...
Since than, all has changed. Again.
As I reduced the steroids down to 2.5mg, the pain returned with the vengeance. So I quickly increased the dose back up. And up. And up, to the old 4mg....
There goes my excitement of getting rid of the drug.
The worst part is, once the pain comes back (with the vengeance), it likes to take a very long time to settle. And by saying very long time, I mean weeks! It's happened previously and it's the third time now. I hope to have learned the lesson.

Back to the pain... Yet again! That horrid pain that keeps me up at night, makes me pop extra pills like lollies. The pain that makes me cry out loud for hours, makes me angry, frustrated, uncentered, irritated... It makes me not being able to concentrate and makes me tired, sleepy, cranky, upset, unsettled, sad, sometimes doubtful, unable to meditate .... The kind of pain that pretty much takes over my existence.
I now know it's temporarily, but that doesn't make it any easier. Easier to handle emotionally perhaps, but not physically. It is just plain hard.

In one of those moments of pain, this insight came by:
'We are never given what we are not able to handle'
Blah, blah, blah... I thought at the time, since I was in agony and I didn't feel like I was handling it at all.
But, here I am. Yes, I am strong, positive, determined and I love life, no matter. I love life so much, that no matter how bad my pain, I am willing to handle it. Handle it in any way I possibly can. I am doing whatever it takes to get well again.

Like a Yo-Yo, that's my life at the moment. And the moment seems to last forever ...
But that's it, I suppose. No matter how bad it is, there are million things around me every day, reminding me how precious and beautiful my life is.
The nature with its crisp ocean breeze, my family with the warmth of hugs and kisses, or lovely self-initiated 'I love you's by my daughter, the deliciousness of fresh, nutritious food, the fun times filled with laughter, surrounded by my dear friends, ....
All different things, great and small. In every moment of our life. Things considered good and the ones considered bad. All together, woven into this amazing journey called life.
And I decide to accept it all. Including pain.
I decide to stay right here, right now, being present in this very moment. Accepting every bit of it, as much as I possibly can. After all, Yo-Yos are meant to be fun, aren't they?

Friday, May 18, 2012

"If You Think You Can Or If You Think You Can Not, You Are Right!"

Very wise quote by Henry Ford. It made me think, many times... And every time I agreed to it, strongly.

I had a full body bone scan yesterday. Results reviewed by my Doctor today. The results were 'kind of' neutral. I say neutral, because they weren't really much worse than a year ago, which in the 'advanced cancer terms' means good.
Well, bad news is, that even after chemo, there still are 30+ tumors showing in the bones pretty much all over my body: scull, neck, one of the shoulders, all over ribs, lower spine, mid spine, upper spine, both hips, pelvis, down both legs.... yes, all over.
However, they are not new. They have been there for well over a year, they haven't grown and many of them are possibly shrinking.

The above news can easily be taken with a huge disappointment and negativity. I could easily make myself feel sad, angry, scared, doubtful, full of 'what ifs' etc. And possibly make myself spiral into the darkness and depression.
But I choose not to.
I take the news as positive. Very much so.
There is no talk about my organs being affected, which is great. No talk about being worse, or that chemotherapy is not working, or that there are no more treatments left etc.
My pain level is much better than a month ago, which is fantastic. I am reducing the painkillers again, yay! I feel quite well, energetic. Physically much better than 6 months ago, much stronger, too. Mentally, I am filled with clarity on what to do next. Spiritually, I am content and with deeply seeded trust and belief that all is unfolding perfectly.

It is all in the mind, isn't it? We make choices every single moment of our life. We are blessed with being absolutely free to decide on pretty much everything: what we eat,  what we wear, what we say, what we think, how we feel... Every moment of every single day. It is completely up to us. And it is all in our head (or wherever the mind might be hidden...). Our mind is such an amazingly powerful tool.

A negative outlook vs a positive outlook. Both extremely powerful. So different, complete opposites, but yet both 100% right. Can you see that?

How about you? Which outlook do you decide to follow?

Sunday, April 22, 2012

Hope

The definition of HOPE: " A feeling of expectation and desire for a certain thing to happen."

When you are faced with the diagnosis of advanced cancer (the cancer that has spread through different parts of the body), or any other seriously life threatening disease, hope is the one and only most important starting point. There is absolutely nothing without hope. No hope, no future.

When I heard my GP voicing the words: "I'm afraid the Xray results show the cancer has come back... " all went completely and absolutely blank. All. Everything disappeared and I was in a deep, empty, dark, black hole, nothing and no one with me, next to me, nor around me. I was in a total state of shock.
The one and only thing I remember to feel was an enormous fear. The fear of death. And an instant question arised: "how long before I die?"
I felt completely powerless, helpless, scared and utterly mortal.
Although always considering myself as a strong person with a solution to any problem thrown at me, at that very moment of the diagnosis, I was completely blank. Totally blinded by it. There was no answer, no solution, no potential plan, absolutely no hope...
All I could think of, when the initial shock settled slightly, was something to help me get through a week of pre-christmas celebrations we had lined up. So I asked my GP for sedatives.

Then, after few days of hazily and hopelessly wandering around under the influence of Valium, I decided to make a trip to the bookshop.
As I browsed through the shelves, a book called You Can Conquer Cancer jumped right out to my attention, and I decided to buy it.
The very next day we travelled to the beautiful Castaway Island in Fiji for our christmas holiday. I stopped taking Valium and started reading the book. It only took a page to fill me up with hope.

And there we are - HOPE!
Hope to me right then and there presented the shift of my feelings from being completely powerless, helpless, scared and utterly mortal, to:
  • start seeing the little sparkle of possibility of survival
  • getting answers to million questions
  • seeing the path to possible solutions
  • opening the options of numerous treatments available
  • opportunity for an enormous lifestyle change
  • finding the positives to lean on
  • million reasons to keep believing in positives
  • finding the strength to not give in to the prognosis
  • determination to stick to my new healthy life-style change
  • love to life, myself and to people around me
  • and the list goes on
Hope is so important. It is (next to love) the main driver in my life.
Hope made me get rid of fear and uncertainty about the future, and instead makes me dream, plan, start doing and keep focusing on the joys of living. It makes me see the future bright and clear, no matter what obstacles (and there are many on my journey) I encounter. With hope within me, I feel safe and certain that no matter what comes my way in the future, all will be well, always.

Thursday, April 12, 2012

I have enough! I want my physical body back!

As I am sitting here on the couch, feeling mentally quite peaceful, but tired and not particularly centred, I can't help but notice my bloated belly popping out of my Tshirt...
And in this very moment, I feel I have enough.

This is just not me.
I am a petite, fit, toned and healthy looking 30 something, with thick sandy coloured wavy hair, lush eyelashes, well shaped eyebrows, big round eyes and an oval shaped face...

Not at the moment.

As I am approaching the end of a course of chemotherapy, my body hair has thinned drastically. My hair is 2/3 gone, so are my eyelashes and eyebrows...
Since I have been diagnosed with advanced breast cancer in the bone (spine, ribs & hips), which involves being in constant pain, I have lost all my muscle tone.

I used to love jogging and practicing yoga. I would jog at least 3 times a week and practiced yoga at least twice. I walked a lot. I was out and about, engaged in some sort of physical activity with my daughter almost every day.
In my mid to late thirties, I was physically the fittest and healthiest I have ever been before.
I felt good within myself - physically. I used to like what I saw in the mirror.

Then, last year, as my pain was getting worse, there were many pills added to my daily diet.
Needless to say, they all have side effects. Especially steroids.
And here I am now, with the combination of 18 months of zero physical exercise, about 10 pills of different medications a day, 12 rounds of chemotherapy...
Yes, here I am, with a horribly bloated tummy, looking and feeling like I was 6 months pregnant, with the hair of a balding 50 year old man, ghostly look on my totally rounded moon - face and a very fragile scrawny body...

But yet I look OK, to strangers - or so 'they' say.

Oh, so looking forward to the day, when chemotherapy is finished, painkillers reduced to minimum or gone altogether, my hair back thick and growing, my eyelashes needing to be looked after on daily basis, my body waxed...
And more so, when I get out of bed, put on those brand new looking snickers (I bought about 2 years ago and only used briefly training for 8 km Mothers Day Classic Fundraising Run) and go for a morning jog around this beautiful beach suburb I live in.
And to the day, when I dress up in my yoga gear and join the local yoga group again for weekly sessions...

The down is - I can't book in the next 'fun run' event just yet nor the date to start training or practicing yoga. I have no idea when exactly that time will come.
However, I know it is going to happen! I know, I can feel it and I do not have a doubt! In my mind, it's never gone away, it's just my physical body that needs to catch up somehow, somewhere in the (hopefully very) near future.

Meanwhile, I just have to stay here, within myself, focus on my other bodies, maintain those in the state of contentment, strength, clarity and determination and practice patience, patience, patience and possibly more patience...

How about you? Where are you at? Is your goal hard to be achieved on a mental or physical level? Would love to hear.

Monday, March 5, 2012

"That which does not kill us makes us stronger"

We are all familiar with the above quote by Friedrich Nietzsche.
Yes, we all kind of believe that, don't we? Well, at least I do. The quote itself makes me feel pretty good about myself. Thinking through the words, makes me feel more at ease travelling through challenges of life. And the word 'stronger' makes me feel powerful...

But yet on occasion, I think to myself: 'What the...?'
How strong do some of us have to be? How strong will I be by the end of my life? What if I'm now content as I am, strong enough, that's it, finished, all done and dusted... ?!?! I need no more!

Unfortunately life doesn't work that way. There is no remote control to press 'pause', not even for a moment. Or perhaps there is, and that 'pause' button is actually the 'mindfulness meditation'? The time we take to just sit still for half an hour or so and do absolutely nothing. Pause. In the present moment. Completely in the now. Nowhere else. 
At some points over the past year, I have found myself in that present, peaceful state quite often. It feels so amazing it's addictive.
But yet, more often than not, I find myself stuck in my busy state of mind, caught up in thoughts and with the new learned belief of 'embracing' it all, find myself slightly stressed out when something unpleasant happens and I can't really embrace it. It might make me stronger, yes, but it doesn't mean I have to embrace it.

Today, while talking to my counsellor (I should really call her my mentor instead), I realised I have been putting too much pressure on myself for trying to embrace every single moment of my life. 'Embracing' is a very powerful word and although positive, it can easily turn into negative if you find it difficult to embrace a particular situation that happens. It can cause quite a bit of stress when you are not honest with your emotions towards the circumstance. At least in my case.
I realised earlier today, I don't want to embrace unpleasant things anymore. I am accepting them though. In fact, I've learned to accept everything that came my way so far.
From now on, rather than embracing, I will just BE with it. Be, with whatever comes my way, good, bad, nice, sad, happy, exciting, horrible, annoying, irritating, or whatever else there is...

So back to the quote by Friedrich Nietzsche. Yes, great, I am strong, because I am still alive after numerous challenges of my life that could have killed me. But, how strong do I really need to become? Or better, how strong do I want to be? What if I feel I am now strong enough? Can I ask life to stop throwing the 'life threatenning' challenges at me? Please?!?!

How about you? How strong are you?

Thursday, February 23, 2012

Happy Birthday To Me

It was my birthday yesterday.
Celebrations have changed a lot since I've been living with cancer. Not only that my lifestyle and diet have changed (mostly vegan, sugar free, alcohol free... meaning no birthday cake nor birthday drinks), my mindset is different, too.
Looking few years back, I was quite devastated turning 30. I felt old, or perhaps, mature, an adult... I felt like I have hit the stage of life where there's no more excuses to be young and silly, but needing to get all serious about life, needing to know what I want, plan it all out - married, career, house by 34, kids by 36 etc
Little did I know....

After my first diagnosis and by the end of treatments, just a single thought of being 'trapped' in a mortgage almost made me sick. My motto has changed to 'I work to live' (definitely not live to work!). Life (to me) represented one holiday after another. Having one child seemed sufficient. I felt blessed not needing to plan bigger family and relieved not needing to feel 'guilty' to only have one child, since I had 'a good excuse'...
It's only now, 4 years later, that I catch myself thinking about why do I feel like I need an excuse? Or to explain myself to people I meet about:
  • having only one child
  • not owning a house
  • not drinking
  • not eating meat, dairy or sugar
  • having thin hair...

What is my problem? Why do I let myself be influenced by  the 'silent rules of society', when, on the other hand, I claim not to care what other people think about me...
Yes, although I feel like I am in a good place, I feel obliged needing to explain to people, somehow justify my life, my actions and my decisions...Why?
Even after spending most of the past year soul searching, focusing on my mental and emotional healing and spiritual growth, there are still so many parts of me that need to be looked into. No matter how good, content and confident I feel, there are still many complex, slightly unpleasant feelings arising, that I am willing to explore.
There is so much more to learn about who I am, what is my place? What is it, truly, that makes me and keeps me in that 'good place'? In a place, where the superficial norms of society loose their meaning and have no attachments, where I confidently meet and communicate to everyone around me without feeling any pressures whatsoever. Move ligthly, think and make decisions with absolute clarity and act completely and only from the depth of my heart and soul, regardless of my health condition or any superficial barriers I may carry in my mind.

As I turned 39, I honestly don't feel the age nor do I care about it. In fact, in many ways, I feel exactly the same I felt when I was in my 20s. But yet things are very much different. I am different.
Have I achieved what I was meaning to by this age? No.
Have I ever thought I would have had cancer twice in my thirties? Of course not.
Have I ever thought I wasn't going to eat meat, or drink alcohol or not have a piece of cake, not even on my birthday? Absolutely not.
Do I have any regrets? Not a single one!

So, there we are. The unpredictability of the fragile life... The changes we, humans, can make. The actions we take are enormous. The strength we carry inside is unimaginable. Getting older, wiser, to mature and to be willing to change, is extremely empowering.

And as I felt devastated turning 30, I now feel totally blessed to be here to be able to turn 39 and looking forward to 40 and 50 and 60... and 70 and ... oh my oh my, there will be the biggest party on the planet earth when I turn 80 in 2053!
No middle age crisis here, no botox, no collagen injections planned, nor face lifts or plastic surgery... I am embracing every single moment of getting older, just because I am well enough to be able to!

How about you?

Wednesday, December 14, 2011

I am In A Good Place

Too often I get: 'Oh Tina, I am so sorry for you...' kind of statement from an acquaintance or a dear friend.
Lots of comparing, too, like 'I got this horrid cold / flu / gastro, nothing like you though...'
or 'Been crazy at work, way too busy, too stressful, but nothing compared to what you're going through...'

Can I please ask you all to STOP comparing!
I am in a good place.

I know how you feel. I seriously get it. I can remember, I've been there. I can still (even if only just) vaguely feel it all over my body, mostly in my chest and tummy, that unpleasant feeling of tightness, shortness of breath, stress, feeling of being trapped... Or that other feeling of being so unwell from cold or flu, that you can't get out of bed, feeling weak, one moment hot and sweaty, next moment cold and shaky... Or when your throat is so bad you can't swallow anything but a luke warm tea perhaps... Or the self inflicted sicknesses like when you had too much to drink and spend the whole night in the bathroom....Or when you picked up some gastro somewhere....
It is a horrible feeling! Horrible and horrible again. Especially when you have no time to rest (because of deadlines at work) or have no knowledge on how to handle it within you.
That feeling of constant inner stress (if repeated for lengthy periods of time), is what (to my opinion) causes serious critical illnesses such as cancer and / or many others.
All of the above are symptoms, a bit like warning signs from your physical body telling you to slow down, take a break. A rest. Time out. Perhaps take a nice relaxing holiday, respect your body, nurture it, love it... Make it feel better.
But unfortunately, more often than not, we instead pop few pills, perhaps give ourselves a day to recover, when we literally can not move, and then back to the action... Back to the busyness, stress, hobbies, parties, especially this time of the year.

Well, that was me, anyway...
Since my secondary diagnosis (it was 1 year anniversary yesterday), I have been on a healing journey.
Quite funny really, as I had a few most important projects still to finish at work last year before my 'end of year' deadline, but I had to see the Doctor because of my incapacitating back pain. I took a day off and after X - Ray results showed cancer had returned, my work disappeared from the priority list completely, totally, 100%. In fact, I have not worked from the office since 13th December 2010. A day before my diagnosis.

So, how important the job really was?
What is it that is truly important?

For me, right there and then, at the Doctor's suite delivering the news of 'cancer has returned', the only most important thing was life. Life, including my young family - my daughter, my partner and myself.

In my personal experience, that was it. As if the whole wide world (including all my other family members and dear friends) just completely disappeared.... Right there and then, in that moment of existence, there was only myself, being alive and well, with and for my daughter and my beautiful loving man. For that instant, absolutely nothing else mattered nor existed. It pretty much went blank.
It was a huge awakening.
And it was good. Priorities have since been so clear, there is no chance to ever un-see them again.

Right then, on 14th Dec 2010, with all the stresses of my past, going way back to my early childhood, the present lifestyle and the cancer diagnosis, I was in a very deep and dark place. In a place, where for few days I felt totally hopeless and seriously didn't see the way out. I had felt like I have completely lost control of life and that there was absolutely nothing I could do to change it...
Luckily, I found the book that opened my eyes, filled me with hope and I was able to climb out of that deep dark abyss and into the light, seeing there was future and it can be bright.
And so my healing journey started.

Comparing myself, my well being and the place I am at now, to the place I have been for many years in my past, it's literally like day and night. It is so different, I find it extremely difficult to put it into words.

I can try to describe the current place as the place of peace of mind, emotional stability, contentment, existence without stress, lots of clarity, obvious and vivid priorities; the future that is laid in front of me like a huge circle with million possibilities and not just one single path or perhaps a couple; the belief of trust and certainty that all really and truly is unfolding perfectly...
Never mind the lumps and fractures in my body, there is so much more than physical bodies.... It's the wholeness of ourselves. It's our mind, emotions, spiritualism, soul.
They all are to be attended to and have a special place in our existence, as it's only when they all are in balance and harmony, one as human being can truly be whole & complete, which leads to that ultimate state of contentment that most of us are striving to achieve...

So next time you're tempted to compare yourself with someone with some sort of serious disease, stop yourself and have a think ... Where am I at - physically, mentally, emotionally and spiritually?

As for me, although I physically am the most fragile and weak I have been in my life, I'm undergoing numerous treatments to improve that one part of my existence, but I truly am in a better than ever place before - emotionally, mentally and spiritually. I am at peace.