Showing posts with label mindfulness. Show all posts
Showing posts with label mindfulness. Show all posts

Saturday, June 9, 2012

Like A Yo-Yo

Coming off steroids isn't fun. I feel annoyed, shaky inside, weak on the outside. Still moon faced, horribly bloated and being very thin haired doesn't help.
The good part is, I am reducing the steroids. Hopefully I can go down to zero. That's the goal. At the moment I'm down to 3mg, from original 4mg.

The above was written about 4 weeks ago now...
Since than, all has changed. Again.
As I reduced the steroids down to 2.5mg, the pain returned with the vengeance. So I quickly increased the dose back up. And up. And up, to the old 4mg....
There goes my excitement of getting rid of the drug.
The worst part is, once the pain comes back (with the vengeance), it likes to take a very long time to settle. And by saying very long time, I mean weeks! It's happened previously and it's the third time now. I hope to have learned the lesson.

Back to the pain... Yet again! That horrid pain that keeps me up at night, makes me pop extra pills like lollies. The pain that makes me cry out loud for hours, makes me angry, frustrated, uncentered, irritated... It makes me not being able to concentrate and makes me tired, sleepy, cranky, upset, unsettled, sad, sometimes doubtful, unable to meditate .... The kind of pain that pretty much takes over my existence.
I now know it's temporarily, but that doesn't make it any easier. Easier to handle emotionally perhaps, but not physically. It is just plain hard.

In one of those moments of pain, this insight came by:
'We are never given what we are not able to handle'
Blah, blah, blah... I thought at the time, since I was in agony and I didn't feel like I was handling it at all.
But, here I am. Yes, I am strong, positive, determined and I love life, no matter. I love life so much, that no matter how bad my pain, I am willing to handle it. Handle it in any way I possibly can. I am doing whatever it takes to get well again.

Like a Yo-Yo, that's my life at the moment. And the moment seems to last forever ...
But that's it, I suppose. No matter how bad it is, there are million things around me every day, reminding me how precious and beautiful my life is.
The nature with its crisp ocean breeze, my family with the warmth of hugs and kisses, or lovely self-initiated 'I love you's by my daughter, the deliciousness of fresh, nutritious food, the fun times filled with laughter, surrounded by my dear friends, ....
All different things, great and small. In every moment of our life. Things considered good and the ones considered bad. All together, woven into this amazing journey called life.
And I decide to accept it all. Including pain.
I decide to stay right here, right now, being present in this very moment. Accepting every bit of it, as much as I possibly can. After all, Yo-Yos are meant to be fun, aren't they?

Tuesday, May 29, 2012

Are You Driven By Fear or Driven By Love

I have recently read a book called Dying To Be Me by Anita Moorjani. I have read quite a few books over the past year, while being on my healing journey. I am not a very keen reader, however there is an occasional book I come across that really grabs me straight away and makes me contemplate. The book Dying To Be Me was one of them. The book itself talks about the near death experience and the importance of love. The 'love' part really made me contemplate.

What is love? How do I define love? Is there such thing as the definition of love, or is love greater than that? How do love and life interconnect?
I get the 'in love' part, when you meet someone and you fall in love... And I get the parent - child immeasurable, unconditional love, too. It's just there, it came to me somewhat naturally. But that greater love that this particular book is talking about, just as many other books on spiritual growth, that pure love within, love that blends into the universe, the infinite power of love that we supposed to all have within.... Well, that part I found extremely complicated and confusing.
So, as I do, I opened myself yet again to the universe to deliver the answer.

And then, during the meditation this morning, something happened. Two words came to me. Love & Fear. And I feel I am now beginning to understand.

I realised I have been driven by fear most of my life. From a very superficial decision making in the past such as what to wear to work (so that I am presentable and so that others think well of me) to more recent and very important decision making such as having chemotherapy or not. There are other examples such as what to eat at meal times, attending social events (that I might not necessary feel like attending), visiting in-laws, going to the office when I felt like I am exhausted and all I wanted and needed was a rest, cleaning the house (although all would wait and nothing would have significantly changed if I didn't) and so on....
Most, if not all of the above decisions were definitely driven by fear. Fear of what other people might think of me, fear of losing my job, not being able to pay mortgage or fear of disappointing friends, in-laws, myself etc or in my case later on - the fear of cancer coming back and more recently, the fear of cancer spreading...
I now know that every single thing I have ever thought of as 'I have to do' or 'I have no choice' or the 'just in case' was (and still is) driven by fear.
And that means that even though I have dealt with the fear of dying or the fear of cancer returning or living with cancer, I still have million superficial fears I need to learn to deal with.

So I openly and extremely happily embrace this morning's revelation that love is in fact replacing the actions driven by fear with the actions that are driven by love and only by love.

I am not sure if any of the above makes sense to you, but to me, it is an enormous and a very significant insight. I feel like I have reached a very important milestone on my healing journey and I couldn't wait to sit down to be able to write it down and have it recorded to remind myself over and over again...
I now know what love is. I finally get it.
Love is huge. Love is so big that we can't possibly define it in a sentence. Love is all and everything. Therefore all I do from now on will be questioned:
Is this action of mine driven by love or is it driven by fear?

My bone pain (caused by cancer) has returned recently, after I started to reduce my painkillers, so I did experience another set back. But this time it was different. Not in a way of intensity of the pain. The pain was just as bad as it was previously when around. I was in absolute agony. And I still am in pain, but it is getting better again, since I have learned to manage it well. The difference this time was my reaction to it. I reacted differently. I let go much easier and much faster than in the past. I also asked for help much faster and I found a possible solution, another bout of radiotherapy.
So today, on my way to my radio-oncologist I asked myself:
'Is this treatment to get rid of pain driven by fear or is it driven by love?'
How can a radiotherapy treatment be driven by love you may think? Well, it actually can. In my case, right now, it is. I love life. I love being active. I love being able to go for a walk on the beach, cycle with my daughter, go on a road trip with my family, a flight to exotic holiday destination.... I love cooking, sitting down, lounging around, doing arts and crafts.... These are only a few things that I absolutely love. And all of these things are compromised when in pain. Radiotherapy will fix my pain as it has in the past. So yes, here I come, driven by love! The love to life I absolutely love living and only the life I love, nothing else.

And so my life will head in the direction filled with love, from now on, always and forever.
How about yours?


Sunday, May 27, 2012

Midnight Monologue (With The Pain)

Why are you here?
What is it that you are telling me?
What am I supposed to do?
How am I supposed to treat you?
How can I possibly just 'be with it' when it hurts so bad?
Is it the leftover pain from within that needs to be let go off? Perhaps acknowledged properly first?
Let go off pain - how? With tears? That seems to help, but only if in a combination of painkiller top ups, monologues like this one and the number of mixed emotions (from deep sadness and helplessness to indescribable frustration and anger) ....

I am acknowledging how blessed I am with my life in the now. I am so blessed to have most loving & caring man & most amazing daughter, my perfect family. Beautiful friends. In the now.

But it wasn't always like that. My past life was unpleasant. My childhood was filled with domestic violence and abuse on all levels. It was almost a complete opposite to my current life. I believe I dealt with all that a long time ago. I believe I have moved on.
Practicing mindfulness, should I keep going back to try and explore all my past wounds further? Randomly or intentionally? Only if the feelings arise or regardless - even when all seems perfect in the now?
I seriously feel I have moved on. Definitely don't feel stuck.
But perhaps I am, on a subconscious level, without realizing?
Perhaps that's what the pain is all about? The leftover of deeply seeded hurt, guilt, fear and anger from my childhood years.
Although I don't feel the guilt, nor fear or anger at present anymore, it could as well be still there, cemented somewhere deep down, and coming out as a horrid & unbearable pain. Is that possible?

Perhaps the right answer truly is: let it be ... and then: let it go

I'm here in Melbourne for a weekend meditation workshop as I'm writing this post. And it's not just any kind of meditation workshop. It's The Mind That Changes Everything, run by Ian Gawler, one of the key inspirations and teachers on my healing journey. I feel so blessed to be able to attend this workshop. And it might as well be perfect timing for my pain to have returned and possibly given me the opportunity to explore it into details, acknowledge it & accept it, (dare I say it) embrace it and finally possibly let it go .... This time for good?
Or perhaps I need to learn to live with it in a loving manner.
Learning to love the pain, well , that's a huge challenge I would love to conquer! So I now open myself to the universe to send me the message once again, to lighten the right path so I can keep heading into the right direction.

Affirmation:
I now lovingly accept every single bit of myself, from my appearance, to my thoughts, feelings and emotions, including aches and pains.
All is me & I am all. Only because of it ALL, I've been moulded into the magnificent person I am today.

Monday, March 5, 2012

"That which does not kill us makes us stronger"

We are all familiar with the above quote by Friedrich Nietzsche.
Yes, we all kind of believe that, don't we? Well, at least I do. The quote itself makes me feel pretty good about myself. Thinking through the words, makes me feel more at ease travelling through challenges of life. And the word 'stronger' makes me feel powerful...

But yet on occasion, I think to myself: 'What the...?'
How strong do some of us have to be? How strong will I be by the end of my life? What if I'm now content as I am, strong enough, that's it, finished, all done and dusted... ?!?! I need no more!

Unfortunately life doesn't work that way. There is no remote control to press 'pause', not even for a moment. Or perhaps there is, and that 'pause' button is actually the 'mindfulness meditation'? The time we take to just sit still for half an hour or so and do absolutely nothing. Pause. In the present moment. Completely in the now. Nowhere else. 
At some points over the past year, I have found myself in that present, peaceful state quite often. It feels so amazing it's addictive.
But yet, more often than not, I find myself stuck in my busy state of mind, caught up in thoughts and with the new learned belief of 'embracing' it all, find myself slightly stressed out when something unpleasant happens and I can't really embrace it. It might make me stronger, yes, but it doesn't mean I have to embrace it.

Today, while talking to my counsellor (I should really call her my mentor instead), I realised I have been putting too much pressure on myself for trying to embrace every single moment of my life. 'Embracing' is a very powerful word and although positive, it can easily turn into negative if you find it difficult to embrace a particular situation that happens. It can cause quite a bit of stress when you are not honest with your emotions towards the circumstance. At least in my case.
I realised earlier today, I don't want to embrace unpleasant things anymore. I am accepting them though. In fact, I've learned to accept everything that came my way so far.
From now on, rather than embracing, I will just BE with it. Be, with whatever comes my way, good, bad, nice, sad, happy, exciting, horrible, annoying, irritating, or whatever else there is...

So back to the quote by Friedrich Nietzsche. Yes, great, I am strong, because I am still alive after numerous challenges of my life that could have killed me. But, how strong do I really need to become? Or better, how strong do I want to be? What if I feel I am now strong enough? Can I ask life to stop throwing the 'life threatenning' challenges at me? Please?!?!

How about you? How strong are you?

Tuesday, February 28, 2012

The Meltdown

I had a lovely weekend and felt good on a nice summery Monday morning. After dropping off my daughter at school, I needed to do a blood test, which is necessary a day prior my next round of chemotherapy. I had a 'chemo break' last week and was about to start the new (fourth) cycle. Each cycle consists of 3 rounds and 1 week break and I am to have 6 in total. So I am now midway. Great, the countdown begins.

Having chemo is not by any means a good thing. No matter how smooth or well tolerated chemo is, it is an extremely unpleasant experience. My chemo is an IV form and even though it only takes about 45 min to administer, it is not nice to say the least. You sit in a neon lit room of the clinic with many other cancer patients and do nothing but wait until it all flows through your veins. You also get some 'extras', either pills or shots for side effects. You are basically filled up with a variety of legal synthetic drugs.
4 years ago, all of the drugs made me extremely sick for the first 24 hours. In fact so sick, I couldn't share the room with anyone, not even with my daughter or any family member. I couldn't talk, eat, drink or do anything but curl up in bed, in the dark and try to sleep it off. Or else I would have been extremely nauseous.
This time around is much better. Different, newer drugs and much lighter immediate side effects. I feel tired, slightly light headed, looking pale, but still able to do all normal chores like picking up my girl from school and taking her to ballet class, having dinner etc. All good from that part.
But yet, it doesn't feel nowhere near pleasant. I would have never add chemo to my 'to do list'. Honestly, it absolutely sucks (excuse my language) and just the thought of it irritates me.

Anyhow, a day prior each chemo, I need a blood test for Doctor to see my blood and my organs (like kidneys) are well enough to handle the chemicals...
So off I went.
I started really disliking blood tests and needles generally. I've been having way too many over the past couple months. And I think my veins can tell. They seem to go on strike every time I enter the Pathology room, or the Vitamin C room, where I'm getting my weekly high doses of Vitamin C through IV. The nurses are having serious troubles finding my veins.
Yesterday morning, all bright and early, happened again. The nurse missed the vein twice. And it was painful. But more so, it was annoying me. All of a sudden I started feeling physically sick, I thought I was going to faint. I got very hot and covered in sweat. Almost shaky. All I wanted is to get out of there.
I had two nurses giving me attention, wanting to try again... But all I could do was walk out and skip the blood test. I had two band aids on both arms, caused by unsuccessful trials.
I felt physically sick and thought I would faint.
Mentally, I could feel the whole lot of unpleasant emotions arising... Stronger and stronger all the stuff started to come out of somewhere deep inside, right out through my body, to my mind and out of my eyes and through my mouth....
Just as I reached the car, the total meltdown began.

I phoned my man. Out came swear words galore, out came the tears pouring, out came 'why me's, 'not fair's, and more and more F words (*I am not the person who swears, ever, no F words nor similar are in my vocabulary).... They all just came out flooding. Out of, what seemed nowhere... But yet it all came from somewhere deep inside of me. It was a moment of unpleasant emotions and it came pouring out.

When we practice mindfulness, unpleasant emotions like anger, become just another emotion to respond to, not to live in. We learn to observe, not to react.
But yet I reacted. I reacted wholeheartedly, crying, yelling, swearing, almost abusing my innocent man on the phone.

And this is what I've learned:
Practice of mindfulness is a lengthy process and no matter how long you manage to stay in 'the good place', it is (unfortunately) not the destination, but a life long journey, which requires one step at a time. Many steps are easy, and get even easier with practice, as you get 'fitter'. You are walking straight line, flat, relaxed pace. Until all of a sudden, you reach an extremely steep hill, or a huge rock to climb, a fence to jump over, or a slippery wet part, or an icy cold patch, a dangerous curve or perhaps just a little sharp stone...
Each step you take is important.
It's not about trying to control the actual journey, but keeping the determination to stay on the path no matter what comes your way, keeping the pace comfortable, safe, accepting whatever comes your way, no matter how unpleasant the circumstances and emotions associated with experience are.

So I had a meltdown. A complete meltdown I have not expected to have. It all came out, which obviously had to, as it was there, somewhere. I felt much lighter afterwards.
And I didn't let the meltdown consume my whole existence. I didn't drag it on and on. It came all of a sudden, I let it all out, I was a bit surprised, shed few extra tears during the day and wondered where did it all come from? But I also sat down for half an hour, in peace and quite, practicing mindfulness meditation to calm my mind and gain some clarity, mostly on where and why did it all happen.
I didn't get the answer, but did calm down greatly. And I didn't continue trying to analyse it or catastrophise it or making up stories around and about it.
Although I am a complete beginner in the vastness of the mindfulness practice, I did notice a difference in dealing with the meltdown, comparing to my past, pre-cancer life. The best part is, I now feel much lighter and calmer. And yet again, I am at peace.

How about you? How do you deal with the meltdowns? How do you cross the obstacles? Would love to hear!

Tuesday, February 7, 2012

Dear 16 year old me!

As you are all curled up in bed, completely lost in the darkness of it all, feeling totally alone, small and fragile, full of nothingness, but yet overfilled by such powerful unpleasant and confused emotions of rage and angst and totally consumed by hatred... hatred to the world around you and to yourself...

I wish I could've been there with you! I would have been holding you tight, comfort you and tell you that
- the world is so much bigger than your small 'home'
- you will go out there and explore the world and yes, you will find a place you love, a place where you feel safe and where you feel at home
- your life is so precious, this is just a stage, although a 10 years long stage, but it will pass, eventually
- the first love is nothing but a stepping stone towards the real love, which, yes, you will find in your early thirties
- the 'family' is not there to stay and haunt you through your life...
- you will be an independent adult before you know & you will leave your broken home and cut the circle of abuse and violence
- you are not alone in this world... there are many people who love you and will support you through whatever happens
- you will experience most amazing things, see & visit most amazing places, and meet many amazing people
- you will find happiness, love and contentment
- you will stop hating and learn to forgive
- you will feel loved, fulfilled, joyous, carefree and sometimes even exceptional

No matter how hard it seems, no matter how dark it seems, it is not that way. You are only 16 years old, baby, you have been unwanted, abandoned, unloved and abused...
It is extremely hard to see it, but believe me, Tina, there is a very bright light at the end of the tunnel and no matter how difficult it all seems, as time passes, it does get easier. It really is just a stage, a stage that has been going on for a very long time and started way before you were able to act on it. You were only a child then, Tina! A young, innocent child, who, by no means could have known how to defend herself.

But the great news is, you are learning the lesson, which is going to help you enormously in your future.
Life is not all rosy, as you know, and it continuously throws many challenges at you. One of them will come in the peak of your newly found happiness, when you are a new mother of most amazing little girl. You will get cancer.

And yet again you will get filled with anger and fear, resentment and guilt.
Until, at 37, the cancer returns and the most miraculous thing happens.

This time, as you face the death, something changes. You make a conscious decision to choose life. It's you, Tina, with your strength you have gathered through those many past years of suffering. It all did happen for a reason.
As you are now facing, for many people, the biggest challenge ever, it doesn't seem that way to you. It is just another challenge.
But this time, you are an adult. You are strong and you feel strong. You love and you feel loved. You are focused, determined and at ease with it. You love who you've become and therefore you love yourself. You have an enormous reason to live, you are a mother... You feel loved, safe and secure. There is no room for anger nor fear left in you....
Life is oh so precious. And you know it and therefore you live it. You truly live it, and you are at peace.
The good news is, you are only turning 39 at present and you've got many years ahead.
Keep practicing mindfulness, day in, day out, and all will be well.

Love x
Tina

Wednesday, December 14, 2011

I am In A Good Place

Too often I get: 'Oh Tina, I am so sorry for you...' kind of statement from an acquaintance or a dear friend.
Lots of comparing, too, like 'I got this horrid cold / flu / gastro, nothing like you though...'
or 'Been crazy at work, way too busy, too stressful, but nothing compared to what you're going through...'

Can I please ask you all to STOP comparing!
I am in a good place.

I know how you feel. I seriously get it. I can remember, I've been there. I can still (even if only just) vaguely feel it all over my body, mostly in my chest and tummy, that unpleasant feeling of tightness, shortness of breath, stress, feeling of being trapped... Or that other feeling of being so unwell from cold or flu, that you can't get out of bed, feeling weak, one moment hot and sweaty, next moment cold and shaky... Or when your throat is so bad you can't swallow anything but a luke warm tea perhaps... Or the self inflicted sicknesses like when you had too much to drink and spend the whole night in the bathroom....Or when you picked up some gastro somewhere....
It is a horrible feeling! Horrible and horrible again. Especially when you have no time to rest (because of deadlines at work) or have no knowledge on how to handle it within you.
That feeling of constant inner stress (if repeated for lengthy periods of time), is what (to my opinion) causes serious critical illnesses such as cancer and / or many others.
All of the above are symptoms, a bit like warning signs from your physical body telling you to slow down, take a break. A rest. Time out. Perhaps take a nice relaxing holiday, respect your body, nurture it, love it... Make it feel better.
But unfortunately, more often than not, we instead pop few pills, perhaps give ourselves a day to recover, when we literally can not move, and then back to the action... Back to the busyness, stress, hobbies, parties, especially this time of the year.

Well, that was me, anyway...
Since my secondary diagnosis (it was 1 year anniversary yesterday), I have been on a healing journey.
Quite funny really, as I had a few most important projects still to finish at work last year before my 'end of year' deadline, but I had to see the Doctor because of my incapacitating back pain. I took a day off and after X - Ray results showed cancer had returned, my work disappeared from the priority list completely, totally, 100%. In fact, I have not worked from the office since 13th December 2010. A day before my diagnosis.

So, how important the job really was?
What is it that is truly important?

For me, right there and then, at the Doctor's suite delivering the news of 'cancer has returned', the only most important thing was life. Life, including my young family - my daughter, my partner and myself.

In my personal experience, that was it. As if the whole wide world (including all my other family members and dear friends) just completely disappeared.... Right there and then, in that moment of existence, there was only myself, being alive and well, with and for my daughter and my beautiful loving man. For that instant, absolutely nothing else mattered nor existed. It pretty much went blank.
It was a huge awakening.
And it was good. Priorities have since been so clear, there is no chance to ever un-see them again.

Right then, on 14th Dec 2010, with all the stresses of my past, going way back to my early childhood, the present lifestyle and the cancer diagnosis, I was in a very deep and dark place. In a place, where for few days I felt totally hopeless and seriously didn't see the way out. I had felt like I have completely lost control of life and that there was absolutely nothing I could do to change it...
Luckily, I found the book that opened my eyes, filled me with hope and I was able to climb out of that deep dark abyss and into the light, seeing there was future and it can be bright.
And so my healing journey started.

Comparing myself, my well being and the place I am at now, to the place I have been for many years in my past, it's literally like day and night. It is so different, I find it extremely difficult to put it into words.

I can try to describe the current place as the place of peace of mind, emotional stability, contentment, existence without stress, lots of clarity, obvious and vivid priorities; the future that is laid in front of me like a huge circle with million possibilities and not just one single path or perhaps a couple; the belief of trust and certainty that all really and truly is unfolding perfectly...
Never mind the lumps and fractures in my body, there is so much more than physical bodies.... It's the wholeness of ourselves. It's our mind, emotions, spiritualism, soul.
They all are to be attended to and have a special place in our existence, as it's only when they all are in balance and harmony, one as human being can truly be whole & complete, which leads to that ultimate state of contentment that most of us are striving to achieve...

So next time you're tempted to compare yourself with someone with some sort of serious disease, stop yourself and have a think ... Where am I at - physically, mentally, emotionally and spiritually?

As for me, although I physically am the most fragile and weak I have been in my life, I'm undergoing numerous treatments to improve that one part of my existence, but I truly am in a better than ever place before - emotionally, mentally and spiritually. I am at peace.

Tuesday, November 29, 2011

'Meditation' or 'How I Discovered My New Best Friend'

If you are anything I used to be just over a year ago, your thoughts, excuses and opinions on meditation may sound a bit like these:
  • I know I should, but it's not for me
  • I know it's beneficial, but I can't do it
  • I'm just not good at meditating
  • I don't have time
  • How boring is it to do nothing
  • I just can't meditate
  • I can't stop thinking
And many more....

My first experience with meditation goes back some 8 years ago when I started practicing yoga. We were having 45 min of a very strong, dynamic moving, active astanga vinyasa style session, followed by only 5-10 min of led relaxation meditation to finish. Those last 5 min seemed to last forever.... I was lying there, all sweaty and pumped after an excellent workout, with my mind going 100km/h. Couldn't wait for the 'yogi' bell to come up to finish the session, hurrying back to the busyness of the day. There was a great feeling I was left with, but it had absolutely nothing to do with the perfect balance that yoga is supposed to be all about. I felt hyper active, pumped, but somehow relaxed, clean, flexible and light moving. In the 8 years of active yoga practice, I unfortunately didn't get much of a deeper mental or spiritual benefit at all... It was almost solely physical experience.

Than, in December 2010, the diagnosis of advanced breast cancer that had spread into my spine, slapped me across the face. It was harsh. Very very harsh. It was the closest near death experience I've ever felt.
But it wasn't all bad, as it woke up the desire to change and brought up the need to heal. The very strong need,  which was hidden somewhere deep inside of me.

I found myself reading the first book at the very beginning of this particular journey - You Can Conquer Cancer by Dr. Ian Gawler (the founder of The Gawler Foundation) and it all started to unfold. The puzzle to re-build my new self, my new life in perfect health, was right there in front of me and I discovered tools that can be of enormous help.
One of those most important tools is MEDITATION.

Right there, during Christmas Holiday, on the beautiful Castaway Island of Fiji, I started to see and plan my future, my upcoming 'healing journey'. I began to understand the importance of meditation for the peace of mind.

Having cancer is one of the easiest, most guilt free or accusation free 'excuses' to be depressed, lose the will to live, the desire to ever change, to see positives, or just to simply even see the future... No one will ever say anything bad about you if you suddenly let yourself go depressed or caught in some extreme emotion of any way, while diagnosed with a potentially terminal, definitely life threatening disease such as cancer. Especially advanced cancer, with the very poor prognosis of (in some cases) only 3-6 months left to live. Everyone is there for you to make whatever left of your life easier and to support you with whichever step you may choose to take next.
So, no wonder many people go for 'living it up' lifestyle, filled with alcohol, party, junk food, busy and in a hurry to live while still alive, rushing through the 'bucket lists'.... Or the complete opposite of giving in, letting be sick and sooner, rather than later, let yourself go to rest in peace...

But, is that really what's all about? Are there really only these two choices?
Why, yes, for many there are, but I found myself in a very different position. I actually decided to get well again. And to do everything I possibly can, use all the tools available to help me achieve that. Meditation was one of the first tools I came across.

There are many types of meditation, for many purposes: relaxation for peace of mind and clarity, stillness, mindfulness, awareness for being present in the moment, imagery and visualization exercises...
They are all amazing, very beneficial and they actually all work in some kind of way. All you have to do is firstly open yourself to experimenting and commit to practice regularly. If you are well, you might only need as little as 10 min daily to start feeling benefits (in as short time as 2 weeks) and if you suffer from any of the life threatening or chronic conditions, you may need (or perhaps want) anywhere between half an hour to three hours daily, depending on many different circumstances.

Myself, being diagnosed with a seriously life threatening disease, and with a deep seeded belief of  'can not meditate', I decided to commit and scheduled in 3 half hour sessions a day in the first couple months of my 'healing journey'.
I also bought few guided meditation CDs, found myself an experienced meditation teacher, local meditation workshops and a local community based meditation group for once weekly 'meditation group' practice.

When I first started, it was hard, long and messy. I lay or sat there 3 x a day and tried not to think. But the more I tried, the more thoughts came flooding  through my brain. So I tried to concentrate on one particular point. In my case was the black space in front of my closed eyes. It was nice to find nothing was there. Just that blankness of it made me feel good and slightly relaxed.
As I spoke to my meditation teacher, I learned that there was no such thing as 'stop thinking'. That came as a huge and very welcome piece of information. All of a sudden the pressure of trying not to think has lifted.
'Wow, I can actually keep thinking!' I thought, 'That is great!'
And once I realised that, I pretty much stopped stressing about thoughts popping into my head. Every thought that arises, has since been welcome to arise, and off it goes away.... Without judgement, without attachment. And all of a sudden, there is no stress attached to it. Such a simple thing, yet such an enormous and fulfilling progress.

That was my first step in forming a very solid friendship with the meditation. No more stressing... It didn't leave me stressed or irritated anymore, but instead much calmer, relaxed, with a good peace of mind and some clarity.

I tried to read few books on meditation, but my 'boring' mind started kicking in.... No, I am not a very keen reader. My relationship with meditation is much more exciting when put into practice.
But I did find (and I still do) guided meditation CDs very useful. Some of my very favourite CDs are Mindfulness Meditation with Paul & Maia Bedson and I can never go past Dr. Ian Gawler, his PMR (progressive muscle relaxation) and The Healing Journey. They are all available from www.gawler.org. And no, I am not sponsored by The Gawler Foundation, I just sincerely love their work, am their great fan and I am so very thankful to have found them. They have indeed played a major part on my healing journey.

Anyhow, that's my precious new friend, the meditation. I can not imagine my life without it anymore.
It's always there, with me.... Wherever I am, wherever I go. Whenever. Now, later, tomorrow, anytime, anywhere. It is a part of me now. It is the part, which I've never really known existed, the part I used to call 'boring' or perhaps the part that I, for some reason, chose to ignore. That very special part, somewhere deep within me, the calm, the stillness, the quite, peace, contentment.... And it's always there, easily accessible with my new best friend - the meditation.

Friday, November 18, 2011

3 steps forward, 1 step back

Ah, the unpredictability of the life with cancer...

Just as I thought all is under control, decided to take a well deserved break from heavy decision making on serious treatments, or starting any suggested serious treatments such as chemotherapy (which I have been postponing for quite a few months), I woke up the other day in an excruciating pain. And this time, the pain decided not to go away. Not with a top up pain medications, not with a session of acupuncture, meditation, rest... Nothing seemed to help.
As the day progressed, the pain was getting worse and worse, until it got so bad that I simply curled up on the floor, unable to stand up or even sit up. It was most physically agonizing pain I have ever experienced, and I couldn't move without the help of my loving man. Breathless and unable to get the words out ... All of the muscles around back and front of my lungs were in a complete spasm.

It took me at least 20 minutes to come back to breath, be able to talk and phone my after hours palliative care team for advice. Few top up painkillers, another phone call an hour later and doubling the usual dose, left me quite high, but somehow numb to the pain and I ended up having a very needed deep, long night sleep.

Positive me, I hoped for a good, pain free morning to wake up to. Gosh I was wrong!

I woke up fresh, at peace, well rested, but realised soon after that I couldn't move. The mission to the bathroom was pretty much impossible. In fact, it was so bad, I couldn't even sit up to take my morning medication. I was very close to be completely paralyzed from neck to hips.
I crashed back onto my bed in agony, took quite some time to relax, release and catch enough breath to be able to start talking...  Needless to say, I was straight on the phone to the Doctor, organized an ambulance and off I went to the nearest Emergency.

So much about being in control... And reducing my painkillers.... And taking a  'well deserved Xmas break' from cancer :-))))

What have I learned?

In this particular event from the past few days, I have learned there is often no such thing as taking control over the situation.... No such thing as a 'deadline', or a break, holiday, time out...
Sometimes, things just occur, very unpredictably and totally unplanned, out of our hands, nowhere in our agenda.

It is in a way similar to the experience of being a new parent.
Once your child is born, you are a grown up, a parent, responsible 24/7, for the rest of your life. There is no manual, no agenda on baby's sleep, no knowing what comes next. It is extremely unpredictable.
And no matter how tired you sometimes may feel, no matter how much you feel like you need a long, uninterrupted good night sleep, there is no break from it. And it is pretty much out of control, at least yours, anyway... It seems that all of a sudden, a little innocent newborn, so precious and dependant, completely changed your life.

Please let me explain in a more detailed way:
By no means I intend to be negative about being a new parent, as it actually also is the most amazing experience, better and greater than anything you could have ever imagined. It is also the most rewarding. And it teaches you so much.

Being a mother, I have learned million things, but the two that really stand out for me are:
  1. true, immeasurable, unconditional love (instantly)
  2. patience (work in progress) 
In my case, being a mother and being diagnosed with advanced cancer, seems very comparable.

The secondary diagnosis of cancer has changed my life completely, and mostly (just like being a mother) in the most amazing, positive, rewarding way.
Over the past year, I have left my stressful job, changed my diet to the healthiest possible, started to meditate, surrounded myself with people that I want to be surrounded with, my priorities are very obviously recognised, I have found a peace of mind, gained clarity, got rid of the guild, anger, learned how to deal with stressful situations in a healthy, peaceful manner ... And the list of positives goes on and on.
But most importantly, I have started practising true, immeasurable, unconditional love towards myself and I am learning, day by day, to be patient.

So yes, I have learned that sometimes things happen suddenly, very unpredictably, totally unexpected, unplanned and out of our hands.

I have recently opened myself to starting another session of chemotherapy, but naively thought it could wait until the beginning of new year. I seriously believed my cancer in the spine can take a 2 months vacation from a much needed treatment, without compromising my well-being, let me enjoy the festive season and then, when I am ready with my 'new year resolution list', we can start 'fresh after a break' - in my own time frame.
Yes, I was very wrong.

But whatever happens, no matter have unexpected and horrible it may feel when it occurs, it is just a moment. A moment, that just like any other moment in our life, is sure to pass.

And so we move through life - 3 steps forward, 1 step back, learning to embrace the uncertainty and unpredictability, knowing that although slow, with many possible set-backs, we still are moving forward, towards the completion of the circle of life as we know it.

To conclude, I will use a simple, but yet very deep and powerful mantra by my dear friend Jane:
'All is well. All is well. All is well... Always!'



Wednesday, August 31, 2011

Life Is Beautiful

Funny how our moods change, our minds play up and send us such different massages, day in, day out....

It's a beautiful day today! I feel so happy. I appreciate each and every moment of my existance.

It makes me wonder what triggered the cancer thoughts to go on vacations?

Is it the meditation I managed to consistently practice for the past few days (although I fell asleep 15 minutes in - every time)?
Or is it a visit to my 'Guru', which filled me up with new energy, gave me the clarity into the next couple of month of healing journey?
Perhaps it is a lovely hour spent with my Yoga Teacher, a very wise and interesting woman with amazing stories and great energies?
Maybe it's my daughter, who has been in an extremly joyfull mood for the past couple of days....
Or the beginning of spring?

Whatever it is, it is in me, it feels great and I am not letting it go! I will be holding onto this feeling, embrace it completely and nurture it as long as possible - never mind the lumps, cracked ribs, muscle spasms...
I am content, I am in a great place, filled with peace and clarity.

Life is beautiful!

Thursday, August 11, 2011

The Feeling Of Scared

There it is... The feeling of being scared is back.
It's been a while.
I am to acknowledge the feeling, embrace it, and then move on to a peaceful place.

So I am acknowledging it.

It is not a nice feeling. I can feel it in the chest, slightly short in breath, chatterbox on full volume in my head... 'What if' seems to be the most popular beginning of the questions forming in my mind:
What if I'm wrong?
What if I won't ever feel better?
What if I am going to be feeling more and more pain again?
What if all the lumps in my body start growing bigger and bigger?
What if I'm disillusioned seeing myself healthy in near future?
What if I am still in a denial?
What if I die in few years???

I love my daughter so much. There is no way in the world (or the whole universe) I would ever want to leave her. She is most amazing.
I love myself, too. But, do I love myself enough? Do I love myself enough to get my act together and get back into the routine I know it's most important on my healing journey? The routine of daily practice that brings me 'the peace of mind'... It's all right there in front of me, ready to be done... It's just that, for some reason, I have fallen into this 'I need a break' mode.
I need a break???!!!!??? What the...?!? What kind of break? A break from contentment? A break from 'peace of mind'?

Obviously, it is hard work to sustain the contentment, that's why there are so many miserable people walking around the world.
It is a constant, sometimes more than once daily, practice. It took me at least a couple of weeks to start feeling positive effects. And it took me about two weeks without practice to start feeling negative effects.

The time is NOW!
It is now, that I am to stop, take few deep breaths and keep still for 20 minutes of peace and quite. But, will I? My mind is playing up....
Here I am, writing the post instead.

All of a sudden, as 'the feeling of scared' was acknowledged, I am starting to embrace it!
I'll keep lovingly embracing it for a while longer.

I know it's healthy to feel scared sometimes, and I know it's OK to feel sorry for myself for having such serious disease. I know everyone gets scared sometimes, especially scared of death.

I also know I do love myself enough to get back into my so needed and loved state of contentment. And I am feeling blessed and very grateful to have the knowledge and all of the tools necessary to achieve it, over and over again.
But in times when fear creeps up out of the deepest dungeon, I wish I had someone to accompany me, perhaps hold my hand, whisper in my ear quietly and lovingly, hold me tight and lead me there, where I need to go...
However I do know it is my very own personal journey, which only I alone can travel, to reach my goal of perfect health - in my mind, body and soul!

Tuesday, August 9, 2011

Winter Is Over

What huge few months I've just lived through!

Bones are full of cancer, lymph nodes got few new tumors and even my brain's got few tumors!
I had numerous radiotherapy sessions to ease my pain, a brain surgery to remove the biggest tumor at the back of my head - above my neck, and I underwent the 'gamma knife treatment' for other few (4) little tumors in my brain.

Not sure where to start...

The horrid pain I went through I suppose, which made me visit my Radio Oncologist. He appointed me to the Palliative Care team to give me painkillers for short term relief and prescribed numerous sessions of radiotherapy for long term relief.
Both worked well, although I was quite drugged there for a while trying to find the right type and dose of painkillers.
I remember at one instance I was so drugged, I was afraid / paranoid to leave the house or have any contact with outside world. But I felt pain-free and quite happy.... That being 15 years ago, I would have appreciated it. Not at present though.
Radiotherapy was quite smooth sailing, apart from the last part, when they decided to give me a week's dose in an hour, aimed through my stomach to mid spine and made me sicker vomiting than I have ever been in my life before. Back to the hospital I went on the same night, got some extra drugs and felt better.

Thinking about it now, I could describe half of my winter as being on some seriously heavy drugs.
They included steroids as well, which made me hungry and I ate a lot! Still healthy 'raw' type food though, sticking to my new lifestyle.

These days, I allow myself to have a once a month 'whatever you want to eat' day and I usually end up having some lovely lean organic beef. I also let myself have a little bit of (lowest in salt) cheese and quite a lot of dark chocolate (organic raw vegan friendly style).

Next on the list was the brain surgery!
I met up with neurosurgeon to discuss the procedure. I didn't really want to know the details, nor possible complications. All I wanted to find out was what kind of person he is, how his energies are and what music (if any) he listens to while operating. I was very pleased with him, especially after finding out that him and his team are big fans of U2... Being a huge fan myself, I ordered U2 to be on the playlist during my surgery... And no negatives to be spoken.
I was a bit nervous, I must say, but reading Love, Medicine and Miracles by Dr. Bernie Siegel really helped me to stay positive, learn to be an 'exceptional' patient and  fully trust the process and the Universe.
It was the perfect book to be read and I highly recommend it to anyone facing a serious illness or any medical procedures.
I came to the hospital positively charged and 100% ready. I truly did feel like an 'exceptional' patient. Especially after the surgery went so well that I ended up being discharged in 3 days - a day prior to the best possible predicted outcome.
The surgery left me with 21 staples down the back of my head.

Next on the list was the very expensive, new and the only one available in the whole of Australia  'Gamma Knife Treatment'. It is a laser surgery / radiotherapy, without incision, ran by the team of doctors (including Radio Oncologist and Neurosurgeon) and done in a MRI looking machine. It only lasts few hours, no overnight hospital stay, you can play your own music (so I prepared the 'Gamma Knife' playlist on my iPhone), but most importantly, there are no side effects, no hair loss.... The only downside was the steel frame they 'installed' onto my head, which left me with lots of bruising and a very obvious black eye, which hadn't gone away for a couple of weeks.

It's over now.
The weather is getting warmer, bruising is gone, drugs are reduced to minimum, my head is well healed, bold spots covered with fresh growing hair... Spring is near.

I had this amazing powerful feeling the other day. I felt totally empowered.
"I am amazing!" I thought to myself, "I've had a brain surgery! I am surviving a very serious advanced cancer! And I feel fantastic!"

Bring on the SPRING!

Friday, February 4, 2011

I Don't Want To Die

'I don't want to die' was my first thought back in early February 2008, when a surgeon confirmed the lump in my breast is an aggressive cancer!

No, not me! How can this be happening? No-one in my family (generations back) has ever had cancer. Cancer is genetic, right? Cancer is for people holding back their feelings, their emotions, never let go... Cancer is for people with stress, overweight, uptight, smokers, people that don't look after themselves, don't exercise, victims of every day life, who constantly complain and whine - never happy, always sick, weak personalities, followers .... And the list goes on....

I have always thought of myself as a strong, well balanced optimist, who knows how to deal with everyday stresses of life, shows and lets go of emotions... And I am pretty sure that type of person does not get cancer!
But yet, there I was, newly diagnosed at the young age of 34, with a beautiful little daughter who was just about to turn 1 and a loving man.

2008 was a horrible year. While all my friends were trying to have the second child, I underwent a very aggressive cancer treatment, including 6 months in total of 2 different chemo therapies, leaving me with absolutely no hair (all gone, down to the last eyelash). But most of it, it had left me feeling overwhelmingly emotional, confused, full of doubts about my beliefs and my future, horribly unloved and extremly unhappy.

It took 6 months (with my hair slowly but surely coming back) and a solid exercise routine (oh how great it felt to feel strong and fit again!), to start feeling better and I decided to enjoy my life.
So 2009 ended up being a great year.... By the end, I was fitter than ever before, had 5 fantastic holidays, worked only to live and definitely not lived to work, really enjoyed being a mother... Looking back, 2009 could easily be described as the best year ever.

Then came 2010 and my life settled in a more 'down to earth' routine - less holidays, less exercise, some relationship issues, everyday stresses at work got more intense, the pain in my back (which I thought was caused by boxing exercise) would not go away until whoosh - December 2010 arrived and GP sent me for an Xray of my back.
14th December 2010, a shock diagnosis of secondary (or advanced / metastasised) breast cancer that had spread in the bone hit me like a bullet through my chest that lets you survive, but leaves you with lingering agony, fear and unable to move.

Death! How can I face that? How can I let go of my, now almost 4 year old, daughter? She needs me.
How is this even possible? I had a 2 year all clear / no cancer detected results just two months earlier, in October 2010. And now, just before Christmas, I am told my cancer is back in my bones and it is possible that has also spread to the liver and lungs ....
What the fuck!!!!! Give me a break! I am a healthy 37 year old mother, whose only bad habit in the past 7 years has been occasional few glasses of wine!

Anger! That was the most overtaking emotion at the time of diagnosis... And fear. The fear of death.
And again, there was a 'WHY ME' stage....
Until I found a book called You Can Conquer Cancer.
And then.............. HOPE!
Yes, I can... and yes, I will... conquer cancer!